Saturday, 3 March 2012

Research Initiatives-Innovative Research-Rare Disease Day-Rare Diseases

We’ve Come A Long, Long Way Together… But We’re Not There Yet!

With our rare disease research initiatives for sarcoma and myeloproliferative neoplasms, patients from all over the world can contribute directly to research and connect with others who have their disease, all while learning more about themselves and their genetics. We’re amazed at the progress these initiatives have made, but there’s still a long way to go. With Rare Disease Day this week, we hope you’ll help us spread the word to encourage participation in our innovative research efforts for rare disease. read more..


Levodopa Medication

A friend directed me to this Blog because I Have PD with tremors in my right arm. I have been taking Carbidopa-levodopa for two weeks and so far I have not noticed any significant difference.  Am I being too impatient?   Robert Response: This is certainly a question that others might shed some light on. [...] read more..


Thank You For Helping to Fight Rare Disease!

On Monday we kicked off a campaign for Rare Disease Day to raise awareness of research, especially into two rare diseases, myeloproliferative neoplasms (MPN) and sarcoma. We hoped to reach 500 participants in our MPN research initiative and 800 participants in our Sarcoma Community by today, and are happy to say that with your help [...] read more..

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